Cystic Fibrosis (CF) is a severe genetic disorder. Approximately 1 in 30 people is a carrier of a CFTR gene mutation, and the condition affects 1 in every 3,600 births. The genetic defect disrupts the function of multiple vital systems in the body, including the lungs, pancreas, liver, and digestive system. Children and adults living with CF face relentless daily challenges: difficulty breathing, frequent infections, digestive and absorption issues, and intensive ongoing treatments, including inhalations, chest physiotherapy, daily exercise, dozens of pills each day, and a specialized diet. CF demands continuous medical monitoring, frequent hospitalizations, and complex medical management, impacting every aspect of life – physical, emotional, and social. The Cystic Fibrosis Foundation of Israel : Our Mission and Impact: The Cystic Fibrosis Foundation of Israel (Israeli Nonprofit organization No. 580030096) has been operating since 1967 to improve the well-being of people with CF and support them and their families in coping with the disease: Organizing conferences, study days, and training sessions for medical and para-medical teams. Producing accessible professional information materials for patients and their families. Publishing newsletters with medical updates, information about rights and entitlements, research innovations, and personal stories. Assistance with respiratory physiotherapy, enriched nutrition, medical equipment, and medications. Emotional therapy support. Educational support for children living with CF. Support through the lung transplantation process. Managing and bringing clinical trials to Israel. Improving genetic screening tests and advocating for the inclusion of new medications in the national health basket.
| Address |
Krinitzi Street 79 |
| City | Ramat Gan |
| Zip Code | 5242311 |
| Country | Il |
| Website | www.cff.org.il |
| Email Address | |
| ID Number | 58-0030096 |
| SFC Number | SCF-143 |